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RUTHANN'S BLOG
Part One
FIBROMYALGIA--THE REAL STORY
By Ruthann Emerson Lange
Fibromyalgia is often referred to as an "invisible" illness or disability due to the fact that generally there are not necessarily outward indications of the illness or its resulting disabilities, unless the patient is at the time having a flareup.. The often invisible nature of the illness, and the lack of understanding about its pathology, often has psychosocial complications for those that have this disease.
Individuals suffering from somewhat invisible illnesses in general often face disbelief or accusations of malingering or laziness from others that are unfamiliar with it. What does it feel like? Hellish Pain--___"No its not like the supposed Commercials on TV" It s severe pain 24/7 --flair_ups with pain levels beyond tolerance'-- memory loss'--cognitive dysfunction'--stabbing --shooting--throbbing intensive pain-in most of the body;---chest pain that feels like you are having a heart attack;---Mygraine Headaches;--IBS (Irritable Bowel Syndrome) everything from diahrea to constipation-extreme cramping even after meals;---Hair Loss;---sudden allergies to many things--that never bothered you before;--muscle disruption--sometimes intensive;---often extremities--that cannot function--or involuntary muscle movements;-or twitching--leg pain;--hips that often do not let you walk right--or pain you so badly --you cannot walk.
European documented reports and many here as well including --ProHealth Magazine Fall 2007 (ImmuneSupport.com) states that: Fibromyalgia is a ""Neurologic"" Disease---not a form of "Arthritis" and is NOT a "Pschological" problem__Or disorder.
Fibromyalgia is a Physical disorder with REAL, measurable "Biological" abnormalities.
The depressive symptoms come about due to the resulting excessive pain and disruptive life style. Having this disease myself; I have researched and studied this for over 20 years, It is progressive-with those who have the real disease-and most information is misleading that is on Television and the Internet.
Far too many patients, are put into "boxes" labeled 'Fibromyalgia'; that are plagued with similar symptoms but who do not have the real disease; however suffer from other diseases that 'mimic' FMS..hence the disinformation, and the idea--this disease will "just fade away" if we give patients enough anti-depressants. and bogus remedies.
Most European Doctors; do not even prescribe these meds..but we in the USA hand out prescriptions to just about everyone who has the symptoms, without fully testing to see if people truly have FMS
Please note:A number of other disorders can produce essentially the same symptoms as fibromyalgia. Other disorders known to produce similar symptoms are:
Chronic fatigue syndrome
Depression
Ehlers-Danlos Syndrome
Gulf War syndrome
Influenza
Lead poisoning
Lupus erythematosus (SLE)
Lyme disease
Mercury toxicity
Myofascial pain syndrome
Tendinitis
Thyroid disease
Vitamin B12 deficiency
Vitamin D deficiency
Whiplash-associated disorder
Last but not least; the ones who have determined the criteria for Fibromyalgia are: The American College of Rheumatology
This disease is not Arthritic, and until The AMA recognizes some facts of truth, and appoints other Offices of the Medical Profession to determine the Real 'criteria' for FMS; nothing will change for the people who suffer with this horrible, debilitating disease; that affects the muscles of our body along with neurological problems and so much more.
Needless to say-IF the muscles are so affected, (and they are) then the greatest serious threat to every one of us; is the effect upon the ''heart''. It does not take a "rocket scientist" to figure that one out.--hence also the reports of "Tachycardia" with this disease--(They are NOT Panic Attacks;--Doctors Wake Up!!)
Ahh--finally some Real useful AND INTERESTING facts!
From_
http://fibroresearch.blogspot.com/search/label/heart%20health
RUTHANN'S BLOG
Part One
FIBROMYALGIA--THE REAL STORY
By Ruthann Emerson Lange
Fibromyalgia is often referred to as an "invisible" illness or disability due to the fact that generally there are not necessarily outward indications of the illness or its resulting disabilities, unless the patient is at the time having a flareup.. The often invisible nature of the illness, and the lack of understanding about its pathology, often has psychosocial complications for those that have this disease.
Individuals suffering from somewhat invisible illnesses in general often face disbelief or accusations of malingering or laziness from others that are unfamiliar with it. What does it feel like? Hellish Pain--___"No its not like the supposed Commercials on TV" It s severe pain 24/7 --flair_ups with pain levels beyond tolerance'-- memory loss'--cognitive dysfunction'--stabbing --shooting--throbbing intensive pain-in most of the body;---chest pain that feels like you are having a heart attack;---Mygraine Headaches;--IBS (Irritable Bowel Syndrome) everything from diahrea to constipation-extreme cramping even after meals;---Hair Loss;---sudden allergies to many things--that never bothered you before;--muscle disruption--sometimes intensive;---often extremities--that cannot function--or involuntary muscle movements;-or twitching--leg pain;--hips that often do not let you walk right--or pain you so badly --you cannot walk.
European documented reports and many here as well including --ProHealth Magazine Fall 2007 (ImmuneSupport.com) states that: Fibromyalgia is a ""Neurologic"" Disease---not a form of "Arthritis" and is NOT a "Pschological" problem__Or disorder.
Fibromyalgia is a Physical disorder with REAL, measurable "Biological" abnormalities.
The depressive symptoms come about due to the resulting excessive pain and disruptive life style. Having this disease myself; I have researched and studied this for over 20 years, It is progressive-with those who have the real disease-and most information is misleading that is on Television and the Internet.
Far too many patients, are put into "boxes" labeled 'Fibromyalgia'; that are plagued with similar symptoms but who do not have the real disease; however suffer from other diseases that 'mimic' FMS..hence the disinformation, and the idea--this disease will "just fade away" if we give patients enough anti-depressants. and bogus remedies.
Most European Doctors; do not even prescribe these meds..but we in the USA hand out prescriptions to just about everyone who has the symptoms, without fully testing to see if people truly have FMS
Please note:A number of other disorders can produce essentially the same symptoms as fibromyalgia. Other disorders known to produce similar symptoms are:
Chronic fatigue syndrome
Depression
Ehlers-Danlos Syndrome
Gulf War syndrome
Influenza
Lead poisoning
Lupus erythematosus (SLE)
Lyme disease
Mercury toxicity
Myofascial pain syndrome
Tendinitis
Thyroid disease
Vitamin B12 deficiency
Vitamin D deficiency
Whiplash-associated disorder
Last but not least; the ones who have determined the criteria for Fibromyalgia are: The American College of Rheumatology
This disease is not Arthritic, and until The AMA recognizes some facts of truth, and appoints other Offices of the Medical Profession to determine the Real 'criteria' for FMS; nothing will change for the people who suffer with this horrible, debilitating disease; that affects the muscles of our body along with neurological problems and so much more.
Needless to say-IF the muscles are so affected, (and they are) then the greatest serious threat to every one of us; is the effect upon the ''heart''. It does not take a "rocket scientist" to figure that one out.--hence also the reports of "Tachycardia" with this disease--(They are NOT Panic Attacks;--Doctors Wake Up!!)
Ahh--finally some Real useful AND INTERESTING facts!
From_
http://fibroresearch.blogspot.com/search/label/heart%20health
Quote ""Thursday, November 22, 200 7_
In the journal Clinical Physiology and Functional Imaging this month, researchers in the Department of Nutrition, Food and Exercise Sciences at Florida State University (Tallahassee, FL) present their findings regarding treating the reduced heart rate variability (HRV) that is found in fibromyalgia patients. Reduced heart rate variability increases fibromyalgia patients' risk for illn ess and death from cardiovascular problems"" UNQUOTE
The same Research Group also note that:
quote___""Research indicates that while all fibromyalgia patients experience pain and stiffness and hyperalgesic responses to experimental pain, only some patients experience psychological distress"" __unquote
Then WHY do Doctors just about always prescribe "Anti-depressants??"
Another QUOTE_ from__"http://www.patientsmedical.com/healthaz/fibromyalgia/types.aspx"---
""Fibromyalgia is a ''progressive chronic pain related illness'' which is characterized by prevalent musculoskeletal pain, aches, stiffness, general fatigue, soft tissue tenderness and sleep disturbances.""
And that folks is just the tip of the iceberg in relation to the accompaniment of so many more problems-that patients experience; all associated with Fibromyalgia.
" Previous studies have shown that fibromyalgia is associated with reductions in gray matter in parts of the brain, but the exact cause is not known. Using sophisticated brain imaging techniques, researchers from Louisiana State University, writing in The Journal of Pain, found that alterations in levels of the neurotransmitter dopamine might be responsible for gray matter reductions.""For the study, magnetic imaging resonance data from 30 female fibromyalgia patients were compared with 20 healthy women of the same age. The primary objective of the study was to confirm original findings about reduced gray matter density in a larger sample of fibromyalgia patients. They explored whether there is a correlation between dopamine metabolic activity and variations in the density of gray matter in specific brain regions."
Results showed there were significant gray matter reductions in the fibromyalgia patients, which supports previous research. In addition, the fibromyalgia patients showed a strong correlation of dopamine metabolism levels and gray matter density in parts of the brain in which dopamine controls neurological activity.
"The authors concluded that the connection between dopamine levels and gray matter density provide novel insights to a possible mechanism that explains some of the abnormal brain morphology associated with fibromyalgia."
PART- 2
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